Adult Registry Groups
Adult Registry Groups

Trial document

A registry for soft tissue sarcoma and other soft tissue tumours in children, adolescents, and young adults Disease children, adolescents, and young adults with soft tissue sarcomas and tumours: Angiomatoid fibrous histiocytoma, Alveolar soft part sarcoma, Clear cell sarcoma, Desmoplastic small and round cell tumour, Extraskeletal chondrosarcoma, Epitheloid sarcoma, embryonal sarcoma of the liver should be treatetd as RMS , Endometrial stromal sarcoma, Congenital infantile fibrosarcoma, Fibrosarcoma, Extraosseous Giant cell tumour, Hamartoma, Inflammatory myofibroblastic tumour or inflammatory myofibroblastic sarcoma, Low grade fibromyxoid sarcoma, Leiomyosarcoma, Liposarcoma, Malignant fibrous histiocytoma MFH , Myofibroblastic sarcoma, Malignant mesenchymoma, Malignant peripheral nerve sheath tumour incl. The registry is the backbone project of the CWS Study group that will ensure an adequate data base for further clinical and laboratory research. By the means of data collection and validation, the CWS Study group can assess the quality of treatment and provide an advisory service. The feasibility of any cooperation however depends on the existence of a registry for standardised treated patients which encompasses all histiotypes and risk groups of STS. The registry will also provide a clinical data base for a sarcoma tissue repository and biological studies. The ability to correlate outcomes of prognosis with biological markers and treatment is critical. Centrally coordi-nated network will facilitate multidisciplinary research and data sharing.

Prospective evaluation of long-term effects after proton beam therapy on endocrine function of hypothalamus and pituitary gland in adults with brain and base of skull tumors. After irradiation of brain and skull base tumors, impairment of the hormone metabolism may occur because the pituitary gland and the hypothalamus are located in Adult Registry Groups near the irradiated region. The hormone disorders can lead to serious health Big Titty Party. The aim of this study is to investigate the effects on hormonal function in adult patients receiving cranial radiation therapy with protons. The prevalence of pituitary insufficiency after radiotherapy of brain and skull base tumors depends, among other factors, Adult Registry Groups the radiation dose applied.

Diffuse parenchymal lung diseases DPLD are a heterogeneous group of more than different and rare entities which are distinct in view of underlying trigger events, but share development of lung fibrosis as consequence. As the trigger mechanisms are largely unsettled, treatment modalities are limited to steroids and immunosuppressant and often ineffective and an ultimately fatal course is common. Translational research in the field of DPLD is inappropriately weak and, in part, this is due to the limited availability of well characterized patient cohorts with biomaterials. On a long term we expect that our efforts will result in a better understanding of the molecular mechanisms, in improved diagnosis and novel treatment opportunities for patients with DPLD. Diffuse parenchymal lung diseases DPLD are a heterogenous group of orphan diseases, which, together, account for a large number of patients in all age groups and which are characterized by a significant morbidity and mortality. Due to their rare occurrence, these patients are difficult to diagnose and treat, but also to study.


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Adult Registry Groups

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Aspects in the Treatment of Adult Aphasics and Their famlies: A Group Approach in Results and national projections from a population-based stroke registry. The European Cystic Fibrosis Society Patient Registry (ECFSPR). The total proportion of females in the adult group is similar to the proportion of females in. right ventricular dysplasia/cardiomyopathy: need for an international registry. Task Force of the Working Group Myocardial and Pericardial Disease of the Detection of adenoviral genome in the myocardium of adult patients with.
Adult Registry Groups

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Results of the Italian multicenter group GIMEMA with ATRA and idarubicin (AIDA) a population-based report from the Swedish adult acute leukemia registry. Interventions/Observational Groups. Arm 1: adults Written informed consent to participation in WPE's Adult Registry Study (ProReg) - Written. Quality Assurance and Donor Registries Working Groups of the World Marrow Donor () Hematopoietic engraftment and survival in adult recipients of.

Diffuse parenchymal lung diseases (DPLD) are a heterogeneous group of more Lung Diseases ( has established a registry and biobank for adult. children, adolescents, and young adults with soft tissue sarcomas and The registry is the backbone project of the CWS Study group that will. Responding countries in the low-income group reported the highest activity of health survey In Poland, PDAs are being used to collect data for the Global Adult Tobacco Further, the citizen's electronic health registry that is currently being.

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Adult Registry Groups

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